Associations and Organizations Tips

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Is there an online organization for headache sufferers?

American Council for Headache Education

The American Council for Headache Education (ACHE) is a nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headaches and to raising the public awareness of headaches as a valid, biologically-based illness.

ACHE also has discussion forums, support groups, and information on children and headaches.

http://www.achenet.org

   
Is there an online organization for mental health?

National Institute of Mental Health

For late breaking news and information on clinical trials in the area of mental illness, NIMH uses research to help diminish the burden of mental illness. This public health mandate demands that they harness powerful scientific tools to achieve better understanding, treatment and, eventually prevention of mental illness.

For more information, please visit: http://www.nimh.nih.gov/

   
Are there any online organizations or associations for the disabled?

Cancer Kids

Cancer Kids is a web-based organization which began in 1997 with one simple goal: "to help children with cancer tell their stories to the world." Their goal is accomplished by providing links to the personal web pages of children who are battling cancer, through the Stories section of their web site.

Unfortunately, for some of the children, the battle with cancer didn't end in the word "remission" or "cure," but in death. In one sense, these brave little warriors have lost their battle with the cancer monster. Yet, in another sense, they have actually been granted the ultimate victory by being given angel wings. Cancer Kids pays tribute to those children through the Cancer Kids "Wall of Memory."

For more information, please visit: http://www.cancerkids.org

   
Are there any online organizations or associations for the disabled?

National Fathers' Network

The National Fathers' Network is a non-profit organization funded by a grant from the Maternal and Child Health Bureau. Their mission is to "celebrate and support fathers and families raising children with special health care needs and developmental disabilities."

For more information, please visit: http://www.fathersnetwork.org

Fathers' Network en Español
http://www.fathersnetwork.org/web/espanol/index.html

   
Are there any online organizations or associations for the disabled?

National Association for Down Syndrome

National Association for Down Syndrome (NADS), a not-for-profit organization, was founded in Chicago in 1961 by parents of children with Down syndrome who felt a need to create a better environment and bring about understanding and acceptance of people with Down syndrome.

For more information, please visit: http://www.nads.org

   
Are there any online organizations or associations for the disabled?

Easter Seals

An association dedicated to the help of young and old alike. Easter Seals offers information on AcessAbility, Child Development Centers, as well as Adult Day Car Services. Information is especially helpful to those who had polio at a young age and are having recurring symptoms in later life.

For more information, please visit: http://www.easter-seals.org

(This tip was contributed by: Jackie 'Micke' Jinks, Senior-tips Guru)

   
Are there any online organizations or associations for the disabled?

The Sibling Support Project

The Sibling Support Project is a national program dedicated to the interests of brothers and sisters of people with special health and developmental needs. The project is based at Children's Hospital and Regional Medical Center in Seattle, Washington.

For more information, please visit: http://www.seattlechildrens.org/sibsupp/default.htm

   
Are there any online organizations or associations for the disabled?

National Parent to Parent Support & Information Systems, Inc.

NPPSIS has been established to nationally link families whose children have special health care needs or rare disorders. Parents looking for a match or are willing to network with other families nationally.

For more information, please contact:
Kathleen Judd, Project Director
PO Box 907, Blue Ridge, GA 30513
Toll-Free: 1-800-651-1151
Voice Mail: (706) 632-8822
E-Mail: judd103w@wonder.em.cdc.gov

   
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